clinical trialMEDICAL

Successful OIFE Clinical Trial Webinar

Ca. 150 people gathered on Zoom on October 14th to hear an update on the different clinical trials that’s going on in OI at the moment. Lot’s of questions and interaction. Two of the trials are still recruiting: – The Losartan trial (adults) – The Evenity trial (children with OI) Are you or your child…

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EDUCATIONAL

OIFE Clinical Trial Update – save the date!

On October 14th, 2025 we are offering our annual update from ongoing international clinical trials on OI. This year will be a very important one, because we hope to have final results coming out of 2-3 of the bigger fracture reduction trials. The following trials are confirmed to give a status: * The Cosmic and…

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CONFERENCES

2nd OIFE Clinical Trial Webinar Oct 22nd 2024

Summary written by Taco van Welzenis, OIFE Honorary Member Due to the fast developments in the field, OIFE decided to organize another update on clinical trials after the first edition in 2023. An amazing number of 278 people from 55 countries (marked in blue) signed up for the OIFE Clinical Trial Update which took place…

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EVENTS

Successful OIFE Clinical Trial Update

An amazing number of 278 people from 55 countries (marked in blue on the map) signed up for the OIFE Clinical Trial Update which took place October 22nd, showing that OIFE’s outreach is growing year by year. In the end we were around 130 participants who received lots of information and updates from the following…

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RESEARCH

UPDATE ON CLINICAL TRIALS IN OI

OIFE supports and encourages the advancement into research to find new treatments, improve diagnosis and aid a better understanding of OI. We strive to keep the OI community informed of what clinical trials are ongoing. As part of this we are hosting our 2nd clinical trial update webinar on October the 22nd, 2024. The goal…

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CONFERENCES

Remedi4All – Meeting on OI in Bologna

The Remedi4All consortium & the MOI-A Trial (Losartan) Information provided by Claudia Fuchs, EURORDIS What is Remedi4All? The EU-funded multidisciplinary consortium REMEDi4ALL (Repurposing Medicines for All) has an ambition to establish a European research and innovation eco-system that facilitates fast and cost-effective patient-centric development and implementation of repurposed medicines, meeting high unmet medical needs in…

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