RESEARCH

New PhD: Muscles in Adults with OI

06/02/2025By

Interview with Marie Coussens, PhD fellow Ghent University, Belgium Who are you & what is your relationship to OI? I’m Marie Coussens, a physiotherapist living in Belgium and I obtained my PhD last year in October 2023 in health and life sciences at Ghent University. I first started my PhD trajectory in adults with hypermobile…

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ADVOCACY

RARE2030 – Survey to shape future policy

06/01/2021By

We need your help! OIFE and EURORDIS need your opinion on future policy for people with OI and other rare diseases! If enough people with OI worldwide provide an answer to this survey, it will help us shape the future of rare disease policies regarding access to health care, medical and social research and diagnosis…

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