OIFE

Welcome to the new OIFE Advisory Board!

Written by Ingunn Westerheim, OIFE President Why a new Advisory Board?  Since we established the first Medical Advisory Board of OIFE in 2018, OIFE has gone through a lot of changes. We have grown to include 41 member organizations, we have more funding to do more activities, we have grown a large network of researchers, clinicians,…

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MEDICAL

Pain & OI Project reestablished

OIFE wants to focus more on pain & OI, since this is reported to be the most important challenge for people with OI besides fractures. Because of the IMPACT survey we had to postpone our pain project until 2022. But now we have reestablished our OIFE project on Pain & OI. What has happened? In…

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