Interview with Adalbert Raimann, MD, PhD and Gabriel Mindler, MD Gabriel and I are pediatric bone specialists based in Vienna. Most of our working days are spent with children and adults who live with Osteogenesis imperfecta or other rare bone conditions. Over time, many of our patients have come not only from Austria, but also from…
EURORDIS Membership Meeting (EMM) brought together leading rare disease advocates from across Europe. For the first time, the biennial event was held in Riga – a city whose history of resilience and civic action offered a fitting backdrop for discussions on strengthening the voice of the rare disease movement. Across two days of workshops, strategy…
The title and graphic identity of the Latvia meeting Jean Moitry and I attended in Riga is a reference to the Chinese tale of the three monkeys. One of them doesn’t see, the second doesn’t hear and the third hides his mouth. This is an optimistic message because the meaning of the parable is that…
Armaana Ahmad Paediatric Dentistry, Eastman Dental Hospital London I am a Paediatric dentistry and junior researcher interested in dental anomalies in children with OI. I don’t have a formal relationship with OIFE but would like to! I think the Topical Meeting was excellent. Well thought out content allowed networking and sharing of current research with…
The See, Hear, Smile conference was followed by OIFE’s Annual General Meeting (AGM) from June 15th – 16th in Riga, Latvia. In addition to the business part of the meeting, we also shared good examples between our member organizations. Dr. Eva Åstrøm from Sweden gave an update on ERN BOND and the company Mereo Biopharma…
A great topical meeting has come to an end. More than 82 people from 22 countries met in Riga, Latvia from June 14th – 15th to discuss and learn about eyes, ears and teeth of people with OI. The event had a lot of positive feedback already, and we feel we succeeded in creating an…
The topical meeting See, Hear, Smile! hosted by OIFE gathered an international panel of experts and patient representatives from the 14th to the 15th of June in Riga, Latvia. The purpose was to discuss dental, hearing, vision and craniofacial issues in osteogenesis imperfecta (OI). The meeting gathered more than 80 participants from 22 countries. These…
2 Weeks left until Early Bird Deadline! Are you a professional who’s interested in eyes, ears and teeth of people with OI? Or basilar invagination (BI)? Do you yourself have issues related to this? Then we invite you to take part in our seminar See, Hear, Smile! from June 14th – 15th in Riga, Latvia.…
