MEDICAL

Key4OI – Past, Present and Future

16/01/2022By

Who are you and what is your relationship to OI? I am Dagmar Mekking from the Netherlands. I am a mother of a 15 year old daughter with OI. Also I am the director of Foundation Care4BrittleBones. The purpose of the foundation is to improve quality of life for people with OI through research. What…

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RESEARCH

Focus Groups – Key4OI Plus

09/09/2020By

Some people felt that the project Key4OI were missing some important aspects of adult health in OI, when the first set of outcome measures in OI was developed. Now the project wants to develop an additional, supplementary set of outcome measures for 4 new areas.   Ears, teeth, lungs and heart Key4OI wants to develop…

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