At the OIFE general assembly on Friday the 6th of June, the OIFE member organizations unanimously elected a new OIFE Board. – Ingunn Westerheim – OIFE president, Norway – Alessandra Tolaccia – OIFE vice president, Italy (NEW) – Bruno Van Dijck – Treasurer, Belgium (NEW position) – Stephanie Claeys – Board member, Belgium – Natalia…
On April 11th, Ingunn Westerheim and Alessandra Tolaccia represented OIFE at the Annual Summit of the European Society of Association Executives (ESAE) in Brussels. ESAE fosters the professionalisation of Association management through peer-to-peer knowledge sharing and collaboration. As part of the Community, Association professionals learn from one another, gain a thorough knowledge of the sector, overcome…
Thank you so much to Varna Pediatric Endocrine Society for inviting OIFE to attend their annual conference! Ingunn met both engaged doctors and people with OI. Ingunn gave a talk about OI and OIFE to the families and encouraged them to revive their OI-group, to work for better treatment in Bulgaria. Hope to see you…
OIFE believes that all clinical trials and research projects affecting OI directly, should have some kind of patient involvement. Patient involvement can happen in different ways and in different phases of a project. Sometimes advice from a new and unexperienced parent or a child is needed. Other times a person with OI, who can represent…
Ingunn Westerheim and Ida Männistö have been re-elected respectively as President and 2nd Vice President of OIFE for the next 4 years.
