The IMPACT Survey is a successful collaboration between OIFE, Osteogenesis Imperfecta Foundation and Mereo BioPharma. It investigated the economic, clinical, and humanistic challenges of OI on affected individuals, caregivers, and the broader community. The second paper about caregivers offers an in-depth examination of the economic impact faced by caregivers: it reveals how the financial responsibilities…
The IMPACT Survey is a successful collaboration between OIFE, Osteogenesis Imperfecta Foundation and Mereo. It investigated the economic, clinical, and humanistic challenges of OI on affected individuals, caregivers, and the broader community. Now the first article on OI caregivers has been published. As described on the latest paper from IMPACT: Improved support is needed for…
In February I turned fifty. 50 years! When I see the number, I still cannot really grasp it. When I was younger, I felt fifty sounded really really old. And maybe it is? After all – I have probably lived more than half of my life. Have I accomplished everything I want? Do I still…
