CONFERENCES

OIFE Investigator Meeting – a success

On the 17th of November 2023, OIFE hosted the second Virtual OIFE Investigator Meeting for the OI research community. 273 people from 48 countries signed up and more than 160 individuals attended the online event. Attendees were a mix of health professionals, scientists, OI clinicians and a lower number of representatives from industry and patient…

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RESEARCH

ERN BOND HR-pQCT Working Group

The call from the European Reference Network on Rare Bone Diseases (ERN BOND) for building a working group around the use of High Resolution peripheral Quantitative Computed Tomography (HR-pQCT) in OI is still open, closing June 20th 2023. What is HR-pQCT? HR-pQCT can quantify bone microstructure in-vivo at a very low radiation dose, and could…

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RESEARCH

4Frailty Project – Gait analysis and HR-pQCT in Italy

The IRCCS Istituto Ortopedico Rizzoli in Bologna, Italy has started recruitment of patients for two clinical studies. And the Italian OI organization As.It.OI (Associazione Italiana Osteogenesi Imperfetta Onlus) is helping with recruitment. The first 4Frailty project “Intelligent sensors, infrastructures and management models for the safety of fragile patients” – involves the use of an advanced…

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MEDICAL

HR-pQCT: A revolution in bone imaging

Interview with Bettina Willie, Professor at McGill University and Shriners Hospital for Children in Montreal, Canada Who are you and what is your relationship to OI? I am Bettina Willie, and grew up in Utah, US. I earned a doctoral degree in Bioengineering from the University of Utah and I did my first postdoctoral training…

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