The call from the European Reference Network on Rare Bone Diseases (ERN BOND) for building a working group around the use of High Resolution peripheral Quantitative Computed Tomography (HR-pQCT) in OI is still open, closing June 20th 2023. What is HR-pQCT? HR-pQCT can quantify bone microstructure in-vivo at a very low radiation dose, and could…
The IRCCS Istituto Ortopedico Rizzoli in Bologna, Italy has started recruitment of patients for two clinical studies. And the Italian OI organization As.It.OI (Associazione Italiana Osteogenesi Imperfetta Onlus) is helping with recruitment. The first 4Frailty project “Intelligent sensors, infrastructures and management models for the safety of fragile patients” – involves the use of an advanced…
Interview with Bettina Willie, Professor at McGill University and Shriners Hospital for Children in Montreal, Canada Who are you and what is your relationship to OI? I am Bettina Willie, and grew up in Utah, US. I earned a doctoral degree in Bioengineering from the University of Utah and I did my first postdoctoral training…
