On December 29th we learned from announcements from the companies Ultragenyx and Mereo Biopharma that the clinicals trials Orbit and Cosmic to failed to meet their main endpoint, which was reduced number of fractures in children with OI. The Cosmic and Orbit trials There are a lot of clinical trials investigating different therapies in OI…
OIFE’s Stronger Together-project is ongoing and will have an important milestone at our capacity building conference in Valencia in September. The conference is for board members, staff and volunteers from our national OI-organizations. The goal is to make our member organizations better equipped to meet the complex reality that we’re living in – and give…
Interview with Sofie Hellström, mother of Gabriel, affected by a milder form of OI type 4 Who are you and what is your relationship to OI? My name is Sofie Hellström, I am 31 years old and I was introduced to OI in the summer 2020 when my son was diagnosed with a milder form…
