We are proud to share the newest article from the IMPACT survey, that was recently published: “The humanistic impact of osteogenesis imperfecta in adults”. It covers topics like: – How does OI affect the quality of life of adults with OI? – What are the drivers of impact on quality of life? – What do…
The OIFE Magazine interviewed the artist Athena Cooper in 2023. We talked about her art, her relationship and her upcoming art exhibit called the Extraordinary Ordinary Nature of Interabled Love. You can read our interview with Athena here. In March 2024 she however got a femur fracture out of nowhere, and she wrote a piece…
Interview with Dr. Winnie Liu, Oregon Health and Science University (OHSU), Portland, Oregon, USA Dr. Winnie Liu is an adult endocrinologist and takes care of patients at Oregon Health and Science University (OHSU) located in Portland, Oregon. Her clinical and research interests are metabolic bone disease with a focus on OI after joining the BBDC (Brittle…
In OIFE Magazine 2-2023, we interviewed Clara I. Rodríguez who is the group leader of Stem cells and Cell therapy laboratory at Biocruces Bizkaia Health Research Institute in Bilbao, Spain. Our laboratory focuses on the potential of human stem cells and their derivatives for the study of diseases and the development of new therapeutic strategies.…
Interview with Dr. Michael T, University of Hong Kong and Shenzhen In most countries, pediatric surgeons are not allowed to operate on adults with OI because of the way hospitals are organized. Usually, the surgery is performed by an adult physician who knows about one body part (like hip, fingers, knee, pelvis etc). What are…
Interview with Dr. Guus Janus, ISALA Treatment Center Zwolle, The Netherlands In most countries, pediatric surgeons are not allowed to operate on adults with OI because of the way hospitals are organized. Usually, the surgery is performed by an adult physician who knows about one body part (like hip, fingers, knee, pelvis etc). What are…
Interview with Emilie Karense Lykking, newly graduate doctor from University of Southern Denmark I am a newly graduate doctor from University of Southern Denmark, who found interest in OI during my final year of Med. School. At the moment I am working at the department of endocrinology at Bispebjerg Hospital in Copenhagen. I wrote my…
Interview with Ida Vandsøe Madsen, student at the Department of Anthropology at University of Copenhagen, Denmark Ida Vandsøe Madsen is a Ph.D.-student at the Department of Anthropology at the University of Copenhagen. Anthropology is the study of human biological and physiological characteristics and their evolution. She did her Master’s Thesis (final project) on OI as…
Treatment of OI with Parathyroid hormone and Zoledronic acid Interview with Prof. Stuart H. Ralston, University of Edinburgh, Western General Hospital, UK Who are you & what is your relationship to OI? I am a physician and rheumatologist with a special interest in the treatment of bone diseases. I have been taking care of patients…
