ANITA OJANOTKO, FINLAND I am 75 years old and worked as a dentist. I was born in Turku, the ancient capital of Finland. I have Osteogenesis Imperfecta (OI) myself, and two of my children are also affected. Several other family members have been diagnosed with OI as well. The Finnish OI Organization was founded in 1979.…
Get in Touch! Jannie D. Hald, MD, PhD from Aarhus University Hospital in Denmark is searching for more OI-professionals in Denmark, Finland, Iceland, Norway and Sweden for the Nordic OI-Collaboration. Synergy: Many similarities due to physically close location The Nordic countries are physically located close together and share many similarities including a long tradition for cooperation.…
Interview with Jenni-Juulia Wallinheimo-Heimonen Who are you and what do you do and in what way has OI affected your art? I’m a multidisciplinary artist and an activist making political disability arts. My passions are structural violence, aesthetics of assistive devices and issues related to women with disabilities. My background is in textile arts but…
Interview with Anni Kyröläinen, Finland Who are you and what is your relationship to OI? I am Anni Kyröläinen. I am 31 years old and I come from Finland. I was born in Eastern Finland and after high school I moved to Helsinki from my little little hometown. I studied political science in the university…
Dreaming of a good night’s sleep and a day without caffeine By Heidi Arponen, OIFE Medical Advisory Board In 2015 we started a project to study fatigue, quality of sleep and its relation to daytime well-being at the University of Helsinki and Helsinki University Hospital. Initial motivation for the study arose from reports of individuals…
Interview with Michal Daszkowski – curling player with OI Can you tell a little about yourself? I’m 47 years old and live in Warsaw, Poland. At the moment I’m living alone in my pretty accessible flat. I am using a wheelchair for almost my every daily activity. I am working as a freelancer (IT-system and…
Maija Karhunen is a young woman with OI and lives in Helsinki, Finland. She has been working as a dancer, performer and journalist all across Europe. Who are you and what do you do? My name is Maija Karhunen, I’m 29 years old and live in Helsinki, Finland. I mostly work as dancer and performer…
