Jenni in fancy vehicle in snowSTORIES

Artists with OI: Jenni-Juulia from Finland

Interview with Jenni-Juulia Wallinheimo-Heimonen Who are you and what do you do and in what way has OI affected your art? I’m a multidisciplinary artist and an activist making political disability arts. My passions are structural violence, aesthetics of assistive devices and issues related to women with disabilities. My background is in textile arts but…

READ MORE
Small blonde woman with OI sitting in a TV-studio explaining something.STORIES

Work & OI

Interview with Anni Kyröläinen, Finland Who are you and what is your relationship to OI? I am Anni Kyröläinen. I am 31 years old and I come from Finland. I was born in Eastern Finland and after high school I moved to Helsinki from my little little hometown. I studied political science in the university…

READ MORE
RESEARCH

Sleep apnea & fatigue in OI

Dreaming of a good night’s sleep and a day without caffeine By Heidi Arponen, OIFE Medical Advisory Board In 2015 we started a project to study fatigue, quality of sleep and its relation to daytime well-being at the University of Helsinki and Helsinki University Hospital. Initial motivation for the study arose from reports of individuals…

READ MORE
STORIES

Wheelchair Curling with OI

Interview with Michal Daszkowski – curling player with OI  Can you tell a little about yourself? I’m 47 years old and live in Warsaw, Poland. At the moment I’m living alone in my pretty accessible flat. I am using a wheelchair for almost my every daily activity. I am working as a freelancer (IT-system and…

READ MORE
STORIES

Artists with OI: Maija Karhunen

Maija Karhunen is a young woman with OI and lives in Helsinki, Finland. She has been working as a dancer, performer and journalist all across Europe.  Who are you and what do you do? My name is Maija Karhunen, I’m 29 years old and live in Helsinki, Finland. I mostly work as dancer and performer…

READ MORE
Translate »