As the co-chair of the steering committee, Ingunn Westerheim encourage you to join the growing EuRREB (European Registries for Rare Endocrine and Bone Conditions) network and contribute to advancing knowledge and care for patients with rare endocrine and bone conditions. By becoming a participating centre, you can contribute valuable clinical data, collaborate with an international…
On September 12, 2025 OIFE has been represented by Alessandra Tolaccia at the symposium organized by the European Registries for Rare Endocrine and Bone Conditions. Good opportunities to learn what is going on in the world of registries and to network with leading OI- and rare bone experts.
We were two people (Alessandra and Ingunn) who represented OIFE at the 2nd Registries Symposium of the two registries EuRR-Bone (rare bone conditions) and EuRRECa (endocrine conditions) on April 22nd 2024. The Symposium in Milan was attended by 90 people (60 in person and 30 online) from 22 different countries and made the event a resounding success! We got…
EuRREB, the European Registries for Rare Endocrine and Bone Conditions consists of the EuRRECa and EuRR-Bone project. The registries are aimed at maximizing the opportunity for all patients, health care professionals, and researchers to participate and use high quality, patient-centred registries. The aim is to be Europe’s most comprehensive and accessible resource for researchers studying…
