On September 11, OIFE was represented at the annual meeting of the European Reference Network on Rare Bone Diseases (ERN BOND) by our vice president Alessandra Tolaccia. Looking forwards to hear about ongoing activities and projects. The full programme can be downloaded here.
OIFE is lucky to have two patient representatives (ePags) in ERN BOND – European Reference Network on Rare Bone Diseases. This week they have had an important meeting in Norway, to talk about how to improve care and services for people with rare bone conditions in Europe. Not sure what ERN is and does? We…
We have important information for professionals working with rare bone conditions who belong to a healthcare provider in the European Reference Network for Rare Bone Diseases (ERN BOND). Get involved in the new Exchange Programme! And check out the ERN Research Mobility Fellowships! ERN Exchange Programme The European Commission funded the ERN Exchange Programme 2020-2022…
