ADVOCACY

OIFE at European Association Summit

In May 2024 OIFE president was represented at our first European Association Summit (EAS) in Brussels which offered an opportunity to learn from other associations, discuss what the future holds with upcoming EU elections and connect with others leaders and managers of different kinds of associations. The European Association Summit (EAS) is the annual event…

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ADVOCACY

Bilbao conference on ERNs and rare diseases

On October 11th EU leaders and key policymakers gathered in Bilbao, Spain, for the Conference on Rare Diseases and the European Reference Networks taking place under the Spanish EU Council Presidency. Discussions addressed some of the main challenges facing the EU policy framework on rare diseases, explored the future of the European Reference Networks (ERNs),…

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