The EURORDIS Open Academy accompanies patient advocates by offering rare disease-specific comprehensive training programmes that empower advocates with the knowledge, skills and confidence they need to engage with different stakeholders as equal partners. Their schools, supported by ERDERA, offer a blended learning approach that includes e-learning courses, webinars, in-person training, as well as research visits and networking…
The ERDERA (European Rare Diseases Research Alliance) has announced the 18 multinational projects selected under its first Joint Transnational Call (JTC 2025) on “Preclinical therapy studies for rare diseases using small molecules and biologicals.” From 161 submitted proposals, 18 transnational projects were selected for funding, including a project related to OI! It’s a preclinical repurposing…
MICHAEL GEISMAN FELLOWSHIP GRANT The Michael Geisman Fellowship Grant program awards funding to post-doctoral trainees who are currently working on projects with clear relevance to osteogenesis imperfecta (OI), or who have projects that will enable them to develop expertise in OI research. People from all countries can apply. Applications are due October 21, 2024. For questions, please…
On the 17th of November 2023, OIFE hosted the second Virtual OIFE Investigator Meeting for the OI research community. 273 people from 48 countries signed up and more than 160 individuals attended the online event. Attendees were a mix of health professionals, scientists, OI clinicians and a lower number of representatives from industry and patient…
