RESEARCH

New PhD: Extra skeletal complications in OI

New PhD in OI – Extra skeletal complications in OI Interview with Silvia Storoni Who are you & what is your relationship to OI? I am Silvia Storoni, a physician specializing in internal medicine with a particular interest in endocrinology. A few years ago, I came in contact with Dr. Marelise Eekhoff and Dr. Dimitra…

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Logos of member organizations of ESEOIFE

OIFE Affiliated Member of ESE

The OIFE has recently been accepted as a Patient Advocacy Group (PAG) affiliated member of the European Society of Endocrinology (ESE). ESE see this as a two-way partnership, since PAGs play an essential role in ensuring that patients throughout Europe have access to the best information about their condition as well as to diagnosis and…

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ADVOCACY

EuRR-BONE needs your input

The European Registry for Rare Bone and Mineral Conditions (EuRR-Bone) needs input from people with OI and other rare bone conditions to finalize their questionnaires directed towards patients. What are the most relevant aspects for people with OI? Which topics can be disregarded? There is also a separate survey asking for input from professionals who…

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RESEARCH

Osteoarthritis in OI

Interview with Jane Dahl Andersen, MD with specialty in Endocrinology and Internal Medicine at Lilleb├Žlt Hospital, Denmark My name is Jane, I am a MD with specialty in Endocrinology and Internal medicine. My specific interest is in bone and calcium metabolism, in particular the rare disease OI. In the Bente Langdahl group at Aarhus University…

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