Written by María Barbero, President of OIFE Member OI-Paten/Padrinos-OI Padrinos-OI is a non-profit organization and supporting member of the OIFE. The charity works with national organizations with the aim of helping individual patients with OI where medical care would otherwise be impossible, mainly in Latin and Central American countries. Maria Barbero has been the president…
LUCIA TRAVEZ, ECUADOR Who are you and what is your connection to OI? I am Lucía Trávez, and I live in Ecuador. My connection to OI is through my daughter, María Paula, who is 28 years old and has a degree in Education. Your daughter Maria Paula was diagnosed with OI. How has this diagnosis…
Interview with María Barbero, Founder and President of Padrinos-OI Padrinos-OI is a non-profit organization (and supporting member of the OIFE) that originally provided sponsorships with the aim of helping individual patients with OI where medical care would otherwise be impossible. Now Padrinos-OI only works with national organizations that ensure the framework conditions for professional medical…
There will be a big Ibero-American congress on OI in Quito, Equador from October 16th – 18th 2019. There will be international lecturers from Canada, Spain, Colombia and Equador. Target group is both professionals as well as people with OI and their families. More information to be found in the conference webpage: https://www.feoi.org.ec/page/congreso2019
