OIFE

Winners of Black Pearl Award 2021

Ingunn Westerheim and Rebecca Tvedt Skarberg from Norway are the recipients of this year’s Black Pearl Volunteer Awards, an international award that recognizes their volunteer efforts for people with the rare condition osteogenesis imperfecta (OI). How it all started We do the interview on Zoom, since both ladies are at risk for Covid19. But what…

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STORIES

Artists with OI: Mira Thompson

Who are you and what do you do? My name is Mira Thompson and I’m a singer. In what way has OI affected your art?
 As much as I want to say it hasn’t, I also know it completely affects the way I look at life in general. Which does not mean every song I…

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