Group of people, women and men. Some in wheelchairs and others not.CONFERENCES

OIFE Conference 2025

OIFE’s AGM & 2025 Conference in Oslo: Unpredictable weather, false alarms and the missing pieces in the OI-puzzle The 2025 OIFE AGM and conference in Oslo focused on team building, mental health, youth engagement and knowledge gaps in OI-research. People with OI are used to preparing for the unpredictable, and there’s hardly anything more unpredictable…

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EDITORIALS

Patients, people or partners?

OIFE believes that all clinical trials and research projects affecting OI directly, should have some kind of patient involvement. Patient involvement can happen in different ways and in different phases of a project. Sometimes advice from a new and unexperienced parent or a child is needed. Other times a person with OI, who can represent…

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