In Korea, there are very few doctors with enough experience in OI , and because of Korea’s special health insurance system, treatment of OI can be a heavy financial burden for people with OI and their families. In this interview, the chairperson of the patient advocacy organization for OI – Mrs. Du Ri Kim shares…
ANITA OJANOTKO, FINLAND I am 75 years old and worked as a dentist. I was born in Turku, the ancient capital of Finland. I have Osteogenesis Imperfecta (OI) myself, and two of my children are also affected. Several other family members have been diagnosed with OI as well. The Finnish OI Organization was founded in 1979.…
CORNELIA (CONNY) JUNGO, SWITZERLAND I am Cornelia Jungo from Switzerland, 50 years young and I have OI, as well as my mother and husband. OI affects me in many ways, both physically and emotionally. I have to be extra cautious in everyday activities to avoid fractures. Simple things like walking on uneven ground or lifting heavy…
I am Jesús Camilo Osorio Barahona, I am a happy husband, being married to Daysi, a woman that supports me and believes in me. I am the father of two beautiful daughters, Lluvia and Luna (one of which has OI) and I have OI myself. I’ve been lucky to have my parents, my wife and my…
