CONFERENCES

THE VOICE OF PEOPLE WITH OI

One of OIFE’s goals is to represent our members on an international level and be the voice of people with OI and their families. One of our representatives is Rebecca T. Skarberg. She is the voice of people with OI in the European Reference Network for Rare Bone Disorders (ERN-BOND), who had their annual technical…

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CONFERENCES

NETWORKING IN BRUSSELS

OIFE had several representatives in Brussels this week. Our Honorary Member Taco van Welzenis attended the 3rd EURORDIS Multi-Stakeholder Symposium on Improving Patients’ Access to Rare Disease Therapies: https://www.eurordis.org/3rd-access-symposium During the conference there were also opportunities to network. Here with representatives from Open App, Bindeweefsel.Be and Mereo.

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Epos conferenceCONFERENCES

OIFE at EPOS conference

The 37th Annual Meeting of the European Pediatric Orthopedic Society (EPOS) took place in Oslo in April. The conference annually gather more than 500 pediatric orthopedic surgeons, many of them working with OI. Since we knew both the international chair (dr. Darko Anticevic) and the national chair (dr. Terje Terjesen), we took the liberty of…

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