As part of a business trip to African countries, our vice president Alessandra Tolaccia visited the South African OI-organization Brittle Bones South Africa, who organized meetings with OI doctors and researchers in South Africa. Important discussions were had about how we can strengthen collaboration between different countries to improve lives of people with OI. Quote…
Collaboration Call for Gene Therapy and Rare Disease Research Hello, my name is Ayşenur Saygılı. I am currently pursuing a PhD in bioengineering in Turkey, focusing on gene therapy for rare diseases. My research primarily aims to develop innovative gene therapy strategies for the treatment of Osteogenesis Imperfecta (OI) and other rare genetic disorders. My…
What do you think are the most pressing challenges that EU funded research and innovation should tackle for the rare disease community? The European Commission is preparing the implementation of Horizon Europe, the next EU research and innovation programme (2021-2027) with a budget of €100 billion, in an intensive co-design process. As part of the…
