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First article from IMPACT Survey published

The IMPACT Survey is an international research project exploring the real impact OI has on people’s lives. On March 21st the first article based on results from the IMPACT Survey was published in Orphanet Journal: “The IMPACT survey: a mixed methods study to understand the experience of children, adolescents and adults with osteogenesis imperfecta and…

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CONFERENCES

OIFE Investigator Meeting – a success

On the 17th of November 2023, OIFE hosted the second Virtual OIFE Investigator Meeting for the OI research community. 273 people from 48 countries signed up and more than 160 individuals attended the online event. Attendees were a mix of health professionals, scientists, OI clinicians and a lower number of representatives from industry and patient…

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EVENTS

OIFE Investigator Meeting 2023

OIFE Investigator Meeting 2023 – Registration & Abstract Submission open   OIFE together with our Medical Advisory Board, would like to invite you to register for the second virtual European Investigator Meeting for osteogenesis imperfecta (OI). The event will take place on November 17th 2023.   TARGET GROUP -Primarily researchers and clinicians working with OI…

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