Summary by Ingunn Westerheim, Dr Oliver Semler and Dr Lars Folkestad The OIF investigator Meeting is normally held in Chicago, but took place online on April 15th 2021. OIF Investigator Meeting The program chair this year was Dr Deborah Krakow who is Professor and Chair of the Department of Obstetrics and Gynecology at UCLA. This…
Interview with Céu Barreiros, Cardiopneumologist About the heart As most of you will probably know, OI being a connective tissue (collagen) disorder, other parts of the body than bone can be affected. Collagen type 1 is present in different parts of the cardiovascular system, including what we call the fibrous skeleton of the heart, its…
Some people felt that the project Key4OI were missing some important aspects of adult health in OI, when the first set of outcome measures in OI was developed. Now the project wants to develop an additional, supplementary set of outcome measures for 4 new areas. Ears, teeth, lungs and heart Key4OI wants to develop…
