“We feel informed, motivated and supported!” Background Through our activities the last couple of years, we have realized that our member organizations are struggling more and more with various challenges. These include knowledge of and strategies concerning communication, fundraising, advocacy, recruitment of new members and board members. It was the view of the OIFE Board…
OIFE’s Stronger Together-project is ongoing and will have an important milestone at our capacity building conference in Valencia in September. The conference is for board members, staff and volunteers from our national OI-organizations. The goal is to make our member organizations better equipped to meet the complex reality that we’re living in – and give…
The project EUCAPA aims at providing patients, and patient experts, with the adequate knowledge and skills to effectively participate in the Health Technology Assessment (HTA) process. Their courses are designed to empower participants to advocate for themselves and make their voices heard. This will be needed when future treatments for OI comes up for approval…
