Where and how do you live today? I live in Brazil in the city of São Paulo with my parents. I work with dance, I live from dancing, I have a salary. How did you benefit from the Brazilian OI community? When I was a child, my parents participated in ABOI (Brazilian Association of Osteogenesis…
By José Carlos Geraldo dos Santos, Associação Nacional de Osteogenese Imperfeita (ANOI), Brazil From 16th to 18th May 2024, the event “BONE Dysplasias 2024” was held in Lisbon, Portugal. It was organized by the Portuguese OI-association (APOI). The programme was held in Portuguese, so this was a good chance to strengthen networking between the Brazilian…
By José Carlos Geraldo dos Santos, Associação Nacional de Osteogenese Imperfeita (ANOI), Brazil My name is José Carlos Geraldo dos Santos I have two children with OI who are adults. I am part of the board of the National Association of Osteogenesis Imperfecta of Brazil (ANOI). When my children were born, there was almost no…
Information provided by Henrique Benincaza dos Santos, Associação Nacional de Osteogenese Imperfeita (ANOI) How many people with OI does Brazil have? The exact number is unknown; we have an estimate of around 14 thousand people living with osteogenesis imperfecta in Brazil. Tell us about the situation for OI-people in Brazil! In Brazil, we have 15…
