Ca. 150 people gathered on Zoom on October 14th to hear an update on the different clinical trials that’s going on in OI at the moment. Lot’s of questions and interaction. Two of the trials are still recruiting: – The Losartan trial (adults) – The Evenity trial (children with OI) Are you or your child…
On October 14th, 2025 we are offering our annual update from ongoing international clinical trials on OI. This year will be a very important one, because we hope to have final results coming out of 2-3 of the bigger fracture reduction trials. The following trials are confirmed to give a status: * The Cosmic and…
Summary written by Taco van Welzenis, OIFE Honorary Member Due to the fast developments in the field, OIFE decided to organize another update on clinical trials after the first edition in 2023. An amazing number of 278 people from 55 countries (marked in blue) signed up for the OIFE Clinical Trial Update which took place…
An amazing number of 278 people from 55 countries (marked in blue on the map) signed up for the OIFE Clinical Trial Update which took place October 22nd, showing that OIFE’s outreach is growing year by year. In the end we were around 130 participants who received lots of information and updates from the following…
On the 24th of October, OIFE hosted a webinar for the OI community about clinical trials and updates. 235 people from 52 countries signed up. Attendees were a mix of health professionals, scientists, OI clinicians, industry professionals, and individuals with OI and their family members. OIFE is excited to share this current OI study and…
Physician statements on children with severe types of OI Dear colleague, In the literature there is very limited information on fracture incidence during the first years of life in children with OI type III and IV on early bisphosphonate treatment. We understand your busy schedule, but we would appreciate your quick input on the statement…
The second part of OIFE’s annual meeting on June 4th 2022 was an educational webinar open to anyone. And a diverse group of ca 80 participants including OIFE-people, clinicians, researchers, industry people and other interested individuals came together to hear about news from the international OI-community. News from OIFE, ERN BOND & others The first…
In Sweden, the Karolinska Institutet and the Karolinska University Hospital are leading the academic clinical trial BOOSTB4 where we are looking for subjects who have a diagnosis of OI Type III or severe Type IV with a specific collagen mutation. The aim of the clinical trial is to study the safety and efficacy of the…
Our Annual General Meeting (AGM) 2021 took place on Zoom on June 19th. OIFE AGM part 1 (the formal business part) – from 11.00 – 13.00 OIFE AGM part 2 – OIFE projects and collaborations from ca 13.30 – 16.00 CET included: – Prelaunch of the IMPACT survey – News from research (BOOSTB4, TOPAZ, SETRUSUMAB, EURR-BONE…
