OIFE

Meet new OIFE Board member Malene Sillas

14/02/2023By

My name is Malene Sillas. I‘m 27 years old (soon to be 28) and I was born with OI type 1/4. Since I was born, my family has attended the national OI meetings in Denmark, and through these meetings, I have made lifelong friendships that are still a very important part of my life today.…

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OIFE

Meet new OIFE Board member Stephanie Claeys

08/02/2023By

Hello everyone! 35 years ago I was born in Bruges, Belgium with OI type 3. From birth, I was involved with the Belgian Patient Organization ZOI. In 2020 I got elected to the board of ZOI. I love to be with other people who have OI to share experiences, knowledge, advice both as a friend, but…

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