CONFERENCES

OIFE at Re(act) Congress

From March 5-7, OIFE board member Alessandra Tolaccia was representing OIFE at the Re(Act) Congress in Brussels, Belgium. The congress covers different topics related to rare conditions including newborn screening, data sharing, advanced therapies and impacts of rare conditions on patients, families, and society. You can see the full program here. Organisers stressed that strong…

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OIFE

Thank you Anna!

Interview with Anna Rossi, newly resigned OIFE Board Member & Communication Manager.  You have been a Board member of OIFE for more than 8 years Anna. And you have done a fantastic job as OIFE Communication Manager! Before you leave us for the Paralympics, we would like to ask you a couple of questions to…

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