We are deeply saddened to learn of the passing of Birthe Byskov Holm from Denmark. For more than 40 years, Birthe was a strong advocate for the rare disease community, particularly for people living with OI after her son had been born with this condition. She had been a member of the Danish Osteogenesis Imperfecta…
On 24 February 2025 in Brussels – EURORDIS hosted their Black Pearl Award show, where they announced the final winners of the 14th edition of the Black Pearl Awards, celebrating the extraordinary individuals, organisations, and companies driving progress for people living with a rare disease. Stephanie Claeys from the OIFE Board was invited as a guest…
