OIFE

Karen Braitmayer receives honorary doctorate

KU Leuven (university) in Belgium annually awards honorary doctorates to inspiring individuals whose work has had a significant impact on science, society, and culture. With this honor, the university demonstrates its appreciation for innovative thinkers and pioneers who reach beyond the academic world. This year, Karen Braitmayer, a renowned American architect and advocate for inclusive…

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STORIES

Ferre and Martijn in London

To celebrate Rare Disease Day, the pharmaceutical company Mereo Biopharma invited Ferre Castrel and Martijn Dillen from Belgium to its headquarters in London to talk about their lives with OI. OIFE Magazine reached out to them to learn about the experience. Hi guys, thanks for doing this interview! Can you briefly introduce yourselves? Ferre: “Hello!…

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OIFE

Meet new OIFE Board member Stephanie Claeys

Hello everyone! 35 years ago I was born in Bruges, Belgium with OI type 3. From birth, I was involved with the Belgian Patient Organization ZOI. In 2020 I got elected to the board of ZOI. I love to be with other people who have OI to share experiences, knowledge, advice both as a friend, but…

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OIFE

OIFE now in Belgium

We are very happy to announce that the lengthy process of reestablishing Osteogenesis Imperfecta Federation Europe (OIFE) in Belgium has now come to an end. OIFE is reestablished as a new legal entity in Belgium and dissolved as a legal entity in the Netherlands.  Why did we do this? The process started because we had…

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YOUTH

Youth Weekend Belgium

From May 5 to May 8, 2022 the youth weekend will take place in Bruges, Belgium. Registration is open now and will close February 1st: https://forms.gle/tGH2ZeMkPyPVc8o89 Don’t hesitate to contact the organizers on youth@zoi.be if you have questions!

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