Written by Ingunn Westerheim, OIFE president Stephanie Claeys and I had the great pleasure of traveling to Dundee, Scotland, to attend the conference organized by the Brittle Bone Society. You can see the entire programme here. It started with a scientific symposium – with talks about new developments in research and clinical care. Topics covered…
After some various travel hickups we arrived Dundee for the Brittle Bone Society (BBS) Conference 2025 on July 23. It was three days of fun and educational events including news from research, advocacy and stories of lived life with OI. The series of events started with a scientific symposium featuring an international line-up of world-leading…
The Research Grant Scheme from the Brittle Bone Societyle Bone Society (BBS) is still open for applications. You can apply if you are a researcher within the field of Osteogenesis Imperfecta in the UK or in other countries. Application close May 31! You can find out more and apply here.
The Brittle Bone Society are delighted to announce that registration for our Dundee 2025 series of events is now open! This July, we can’t wait to welcome you all to Dundee, Scotland where the BBS was originally founded, for several days of interesting talks, socialising with the OI community and lots of fun. All the…
Written by Patricia Osborne CEO of Brittle Bone Society and Professor Kassim Javaid When adults with rare bone conditions turn 18 they mostly have no dedicated adult clinics or services to transition to. Because of an initiative from the BBS, there is now an official Rare disease collaborative network (RDCNs) established for adults with different rare…
Did you know that OIFE was one of the contributors to the Covid-19 and OI survey that the Brittle Bone Society initiated? Now the article has been published in Frontier’s magazine. Background: Research on the effects of the COVID-19 pandemic on people with rare diseases is limited. Few studies compare healthcare throughout the progression of…
Osteogenesis Imperfecta Federation Europe (OIFE), The Osteogenesis Imperfecta Foundation and The Brittle Bone Society (UK & Ireland) are offering a travel grant for the OI2022 conference in Sheffield, UK which takes place from Aug 30th – Sep 2nd 2022. Healthcare professionals and researchers working in a low or middle-income country can apply to come to…
On September 4th the Brittle Bone Society had their annual conference online. OIFE was represented by Ingunn Westerheim, who gave a talk together with Dr Laura Tosi and Tracy Hart from the Osteogenesis Imperfecta Foundation on how we can fill the many knowledge gaps we have in OI. The talk tried to explain how people…
Thank you to the Brittle Bone Society for organizing the digital youth event in 2021! Participants from around Europe played a game called «Around the World».
