After our Hong Kong conference, our relationship with the OI-organizations in Asia got much closer. As a result we got three new member organizations in Asia – Taiwan, Korea and Japan. In this interview you get to meet the Japanese organization and their chair Tomoyasu Tashiro. Who are you and what is your relationship to…
In Korea, there are very few doctors with enough experience in OI , and because of Korea’s special health insurance system, treatment of OI can be a heavy financial burden for people with OI and their families. In this interview, the chairperson of the patient advocacy organization for OI – Mrs. Du Ri Kim shares…
Who are you and what is your relationship to OI? Hello, I’m Cristina Durán, the General Manager of the Angelitos de Cristal IAP Foundation which supports people with OI in Mexico. I’m a business administrator with a master’s degree in administration and social entrepreneurship, and I’m about to finish a specialization. For the past 16…
Information provided by Henrique Benincaza dos Santos, Associação Nacional de Osteogenese Imperfeita (ANOI) How many people with OI does Brazil have? The exact number is unknown; we have an estimate of around 14 thousand people living with osteogenesis imperfecta in Brazil. Tell us about the situation for OI-people in Brazil! In Brazil, we have 15…
My name is Isis Atuncar, I am from Peru, and I was diagnosed with OI when I was born in 1986. I had the opportunity to receive medication and surgical treatment in the USA. That treatment improved my quality of life. When we were back in Peru, my parents and other families together formed the…
My name is Ted Trahan. I am married to Sharon, and we have two adult children, Greg and Käthe. Greg has OI and we are excited to share that he is recently engaged to Natalie, who also has OI. I am one of the OIFE delegates of the associate member organization OIF in the USA.…
