Group of People with yellow shirtsMEMBERS

New OIFE Member Brazil (ANOI)

Information provided by Henrique Benincaza dos Santos, Associação Nacional de Osteogenese Imperfeita (ANOI) How many people with OI does Brazil have? The exact number is unknown; we have an estimate of around 14 thousand people living with osteogenesis imperfecta in Brazil. Tell us about the situation for OI-people in Brazil! In Brazil, we have 15…

READ MORE
MEMBERS

Meet OIFE delegate Isis Atuncar, Peru

My name is Isis Atuncar, I am from Peru, and I was diagnosed with OI when I was born in 1986. I had the opportunity to receive medication and surgical treatment in the USA. That treatment improved my quality of life. When we were back in Peru, my parents and other families together formed the…

READ MORE
Ted Trahan OIFMEMBERS

Meet OIFE delegate Ted Trahan, USA

My name is Ted Trahan. I am married to Sharon, and we have two adult children, Greg and Käthe. Greg has OI and we are excited to share that he is recently engaged to Natalie, who also has OI. I am one of the OIFE delegates of the associate member organization OIF in the USA.…

READ MORE
Translate »