By Wang Yiou, Founder of China Dolls For nearly two decades, I have had the privilege of working with thousands of people living with OI in China. And as the founder of the China-Dolls Center for Rare Disorders, I have learned that statistics alone never tell the full story. Every percentage represents a child with OI…
After our Hong Kong conference, our relationship with the OI-organizations in Asia got much closer. As a result we got three new member organizations in Asia – Taiwan, Korea and Japan. In this interview you get to meet the Japanese organization and their chair Tomoyasu Tashiro. Who are you and what is your relationship to…
The 2nd edition of OIFE Magazine 2026 is out and this time our focus topic is OI in #Asia. In addition to a guest editorial from the founder of China Dolls you can get to know our three new Asian member organizations from Asia – Taiwan, Korea and Japan. In addition to from news from…
When we organized the East meets West conference for patient groups in Hong Kong in 2025, there was no specific OI-group in Hong Kong. This has now changed and we welcome the Hong Kong OI Association, which was recently established. The group is led by Anna Lam, who has OI herself and and you can…
In September 2022 we met two OI-professionals from Kazahkstan at the Sheffield OI conference. This was dr. Assem Dossanova and her husband professor Dossanov (photo on the right), who is one of the central orthopaedic surgeons in the Asian country, with a small percentage of the country situated in Europe. The couple told us that…
On October 19th the Interim Board of OIFE made the decision to include the Kazakhstan group “Patients with rare bone diseases” as an associate member organization. We wish our friends from Kazakhstan (Central Asia) a warm welcome to our international network. OIFE now include 39 member organizations around the world. 20 in Europe, 15 outside…
The charity CURE International has opened their first hospital in Zimbabwe offering free surgery for children with OI and other conditions. CURE International (CURE), a global provider of surgical treatment for children with treatable disabilities, has opened CURE Children’s Hospital of Zimbabwe in Bulawayo, a first-in-the-nation facility providing life-transforming medical care to thousands of vulnerable…
