STORIES

Artist with OI: Jon Wos

Jon Wos was born in Wisconsin in 1981. He was diagnosed with OI at birth. Though this condition limited his physical ability, it heightened his sensitivity to the world around him, and, out of his love of creation, Jon began drawing as a very young child. When Jon was a sophomore in college, he won…

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Portrait Felipe MateoSTORIES

Artist with OI: Felipe Mateos

For the Artists with OI-column in the OIFE Magazine, we interviewed Felipe Mateos, a stand-up comedian from Spain.  Tell us a bit about yourself! I’m 27 years old and I’ve been a stand-up comedian for eight years. Little by little I am better known in Spain (Television, radio, social networks…) and I have many followers…

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STORIES

Artist with OI: Jay Manuel aka “Mini producer”

Interview with Jay Manuel, Music Producer and Content creator, Georgia, USA Meet Jay “Mini Producer” Manuel, a music producer and content creator based in Georgia, USA. Despite being hard of hearing and living with Osteogenesis Imperfecta Type 3 and Autism, Jay has dedicated his career to breaking barriers and representing young professionals with disabilities in…

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STORIES

Artist with OI: Athena Cooper

Athena Cooper is a visual artist and creativity coach based in Calgary, Canada. Self- taught as an acrylic painter, Athena’s paintings are explorations of what it means to live an extraordinary, ordinary disabled life. Please tell us a bit about yourself! I’d describe myself as someone who has had a pretty wide-ranging set of experiences and…

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Portrait KristianSTORIES

Artist with OI: Kristian Keogh

Kristian is an Australian professional video editor and graphic designer. He is using a wheelchair, but this didn’t stop him from making a dream come true: performing with the Bangalow Theatre Company doing the Musical “RENT”, his favorite musical. Kristian also talks for instance about daily challenges and the situation of people with a disability…

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Sammi hold a ribbon saying Esperanza"STORIES

Artists with OI: Sammi Haney

Interview with Sammi’s Father Matt Haney Sammi loves weird silly toys and takes whatever her current favorite is with her everywhere. She has OI Type III and uses a wheelchair. She has broken hundreds of bones from simple things like turning too much when asleep or sneezing too hard. At the age of 11 she…

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STORIES

Artist and activist with OI: Benjamin Mejia

Interview with Benjamin Mejía, artist & activist from El Salvador Who are you and what is your relationship with OI? I am Benjamin Mejía, I am 28 years old and live in the City of San Salvador, Capital of the Republic of El Salvador, Central America; Currently I am a Fourth Year Student of the…

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STORIES

Artists with OI: Erwin Aljukic

Erwin Aljukic is an actor, dancer, speaker and fashion journalist. Since 1998 he can be seen on TV, in the cinema and at the theater. In addition to acting, he studied fashion journalism and has been working as a freelancer ever since. In 2014 he devoted himself to contemporary dance. Aljukic has been a permanent…

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STORIES

Artists with OI: Pablo Ostarek

The winner takes it all! What a coincidence! Some time ago OIFE had prepared an interview with Pablo Ostarek, an artist with OI, which you can read below. And this week, we congratulate him for winning the 1st prize in the International Rare Disease Film Festival for his short film “This is not a person”!…

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