MEDICAL

Get in touch – preparing OI kids for surgery

Dr. Argerie Tsimicalis (RN, PhD, Nurse Scientist at Shriners Hospitals for Children Canada) and Ms. Jenny Wang (RN, M.Ed., PhD Candidate at McGill University) are looking for participants to help co-design an educational virtual reality (VR) game for children with OI! We are conducting an exciting new study to create a Virtual Reality (VR) tool…

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Graphic cartoon from pooping videoMEDICAL

Bladder and bowel issues in children with OI

Interview with Prof. Gisele Martins, University of Brasilia (UnB), Brazil (main part) and Dr. Argerie Tsimicalis, McGill University, Canada Who are you & what is your relationship to OI? My name is Gisele Martins and I’m a professor of nursing at the University of Brasilia (UnB), Brazil. My involvement with the OI community started seeing…

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ADVOCACY

The voice of children with OI

Interview with Jenny Wang, Shriners Hospitals for Children (SHC) – Canada and Khadidja Chougui, PhD candidate in clinical child and adolescent psychology at Université de Montréal, Canada Jenny Wang: My name is Yi Wen (Jenny) Wang, and I graduated from McGill University with a Bachelor of Science Nursing degree in 2019 and a Master of…

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