SEE, HEAR, SMILE PROGRAMME

 

 

OIFE has previously hosted four successful topical meetings (2006, 2009, 2012 and 2015) and each time we have chosen a topic that has (too) little focus in the professional community. With the 2019 topical meeting “See, Hear, Smile!”, we’d like to focus on some not so common clinical features of OI for the first time.
The goal of the Topical Meeting “See, Hear, Smile!”. is to create an arena to present newer research, treatment methods related to eyes, ears and teeth of people with OI.
The topic also includes neurological issues affecting the head/brain (basilar invagination), which is a very severe side effect of OI with hardly any knowledge in both the professional and patient community. Recommendations of follow up of both children and adults with OI related to the topic will also be discussed. We will also include some lectures relevant for other rare bone diseases. Our hope is to create new informal networks between professionals working on these topics (dentists, hearing doctors etc) and that it can inspire new projects and ideas. There is very little knowledge on several of the topics today, even if hearing loss and neurological issues (basilar invagination) are severely affecting the quality of life of more than 50% of people with OI. There are treatment methods available, but in the majority of countries, they are non-existing because of the lack of knowledge.
We hope and believe that attendance from the OI-community can also bring new ideas and perspectives. Previous Topical Meetings hosted by OIFE have turned out to be excellent arenas for international exchange between professionals and people with OI. We are firm believers that the topical meeting will contribute enhancing the dialogue between our member organizations, our volunteers and clinicians and researchers working in the field – also in newer fields where we have no established networks at the moment.

The programme is a first draft and will be subject to changes. All the titles and timeslots are not 100% confirmed by the contributors!

 

Friday 14th of June 2019

09.00 – 09.15  Welcome & practical informationProgramme Committee
09.15 – 10.00  What is OI?Dr. Antonella Forlino (IT)
10.00 – 10.30 OI & the teeth, eyes & ears – a study of non-skeletal phenotypes in adultsDr. Bente Langdahl (DK)

10.30 – 10.50 Coffee break

10.50 – 13.00 Teeth, jaws & OI

10.50 – 11.05  Teeth & OI – what are the challenges?Anonymous testimonies of people with OI
11.05 – 11.35  Teeth & OI – clinical overviewKristofer Andersson (SE)
11.35 – 11.50  TBA Hans Gjørup
11.50 – 12.05 Crowns, bridges and other prosthodontic treatment in OI
Dr. Ann Lindunger (SE)

12.05 – 12.15 Break

12.15 – 12.30 6-year follow-up study on dental implants in OIDr. Maung Maung Myint (NO)
12.30 – 12.45 TBA
12.45 – 13.00  Questions & discussion (or short talks)

13.00 – 14.00 Networking lunch  

Teeth, jaws & OI continue
14.00 – 14.10  TBA
14.10 – 14.20  TBA
14.20 – 14.40  Questions & discussions

14.40 – 15.00 Break

15.00 – 17.15  Craniofacial issues & OI

15.00 – 15.15 Craniofacial issues in OI – What are the challenges?
Anonymous testimonies from people with OI
15.15-15.55   3D Assessment of the Craniofacial Facial  Aspect of OI
Dr Jean-Marc Retrouvey (CA)
15.55-16.15  Basilar invagination – diagnostics & symptoms
Dr Janna Waltimo Siren (FI)

16.15-16.35 Coffee break

16.35-16.50 Therapeutic approach to oral and craniofacial problems
related to OI
Dr Manuel Joaquin de Nova García (ES)
16.50-17.10  Questions & discussion (or short talks)

17.10 – 17.30 Eyes & OI

17.10-17.30 Eyes & OI – findings from the Danish studyTBA
Risk of glaucoma in the Danish OI populationDr. Lars Folkestad (DK)

17.30 – 18.00 Panel dicussion – guidelines & follow up routines

What to check? With who? And how often?

18.00-18.15 Closure & practical info

19.00  – 20.30 See, Hear & Smile to each other!

Conference Dinner and/or networking event

20.30 Free time

Saturday 15th of June 2019

09.00 – 12.00  OI & hearing loss  

09.00 – 09.15  Welcome & What are the challenges?
Anonymous testimonies from people with OI  

09.15 – 09.45  Ear & hearing – Hearing loss in OI Dr Freya Swinnen  (BE)
09.45 – 10.05  Otological and audiological findings from the Danish study
Dr Christer Swan (DK)

10.05 – 10.25  Hearing loss  in OI – treatment options & follow up
Dr Freya Swinnen (BE)

10.25 – 11.00   Coffee break

11.00 – 11.20 Surgery of ears with OITBA

11.20   – 11.35  Rehabilitation of ears with OI TBA

11.35 – 11.50   Psychological issues & coping techniquesTBA

11.50 – 12.00  Questions / Discussion

12.00 – 12.15  Break

12.15- 13.00   Short talks (all topics included)

12.15 – 12.25   TBA
12.25 – 12.35   TBA
12.35 – 12.45   TBA
12.45 – 13.00   Questions & discussion

13.00 – 13.15   Closure & goodbye

13.15 – 14.30   Grab & go lunch

14.30 – 18.00   OIFE AGM / Other meetings if relevant

Programme Committee

  • Kristofer Andersson, DDS, PhD (Sweden)
  • Jannie Dahl Hald, MD, PhD (Denmark)
  • Lars Folkestad, MD, PhD (Denmark)
  • Kaija Kuurila-Svahn, MD, PhD (Finland)
  • Dace Liepina, OIFE (Latvia)
  • Anna Rossi, OIFE (Italy)
  • Christer Swan, Associate professor, MD, PhD (Denmark)
  • Taco van Welzenis, OIFE (The Netherlands)
  • Ingunn Westerheim, OIFE (Norway)

Questions?

Please contact the organizers at office@oife.org