Photo of small person with blonde hair and red t-shirt.STORIES

E-soccer: Niklas lives his dream

Interview with Nicklas Luginsland – Esoccer player with OI  Can you tell a little about yourself? My name ist Niklas Luginsland, 24 years old. Currently I live at home in Germany with my parents and my brother. One year ago I finished my Bachelor in Public Management. During my studies I lived together with 3…

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STORIES

Wheelchair Curling with OI

Interview with Michal Daszkowski – curling player with OI  Can you tell a little about yourself? I’m 47 years old and live in Warsaw, Poland. At the moment I’m living alone in my pretty accessible flat. I am using a wheelchair for almost my every daily activity. I am working as a freelancer (IT-system and…

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STORIES

Artists with OI: Chiara Bersani

Who are you and what do you do? My name is Chiara and I am a writer/creator and a performer with a disability. I am Italian and I am 35 years old. I work in different fields like performing arts, contemporary theatre and contemporary dance. In what way has OI affected your art? Honestly, I…

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Photo of OI-expert Richard Kruse wearing a suit and a conference badge.MEDICAL

Interview with Dr. Kruse

Dr. Richard W. Kruse recently published a new book on surgery in OI. OIFE was one of the consultants in the writing of the book, to secure that the voices of people with OI were represented. But dr. Kruse is not only a writer. He’s a busy doctor involved in many different projects and activities…

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Logo ERCD conferenceADVOCACY

OIFE at ECRD-conference

The European Conference on Rare Diseases (ECRD) was originally planned to take place in Stockholm in May. Because of the Corona virus, the conference was moved online to May 14th and 15th, which made it possible for more people from OIFE to attend. Five people represented OIFE specifically and you can read about their experiences…

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Bruno Van DijckOIFE

Bruno new 2nd Vice President

At the OIFE AGM 2020, which took place on Zoom on May 9th, we welcomed Bruno van Dijck as a new member of the OIFE Executive Committee (EC). Bruno was elected for four years as the new 2nd Vice President of OIFE. OIFE’s Youth Coordinator Stephanie knew Bruno already, but through the interview below, she’s…

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EDITORIALS

Safe & active in the OI community!

The last couple of months have been anything but easy. For all of us, this pandemic has arrived as some kind of storm, about which we heard something on the news, but never really thought would have arrived and jeopardized so much our daily, ordinary and chaotic days. I live in Italy, one of those countries where…

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CONFERENCES

OIF CONFERENCE ONLINE

In place of the in-person OIF National Conference this year, the Osteogenesis Imperfecta Foundation in the USA will host a Virtual Conference on July 10-12, 2020. The Virtual OIF Conference will provide live online versions of some of the most popular informational and social sessions at the biennial OIF National Conference. People from all countries…

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MEMBERS

New OI song

Check out the new OI-song «Count on Me» performed by 21 singers from the OI-community in 10 different countries! The project was initiated by supporting member of OIFE Care4BrittleBones. Well done!  

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