Illustration of dental implantsRESEARCH

Dental implants in OI

Interview with Dr. Ole Oelerich, Dentist at the Department for Prosthodontics and Biomaterials, University Hospital in Münster, Germany Who are you & what is your relationship to OI? My name is Dr. Ole Oelerich, I am a Dentist at the Department for Prosthodontics and Biomaterials at the University Hospital in Münster, Germany. After completing my…

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Sammi hold a ribbon saying Esperanza"STORIES

Artists with OI: Sammi Haney

Interview with Sammi’s Father Matt Haney Sammi loves weird silly toys and takes whatever her current favorite is with her everywhere. She has OI Type III and uses a wheelchair. She has broken hundreds of bones from simple things like turning too much when asleep or sneezing too hard. At the age of 11 she…

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Flyer announcing the OI2022 conference in Sheffield, UK

Travel Grant for OI2022

Osteogenesis Imperfecta Federation Europe (OIFE), The Osteogenesis Imperfecta Foundation and The Brittle Bone Society (UK & Ireland) are offering a travel grant for the OI2022 conference in Sheffield, UK which takes place from Aug 30th – Sep 2nd 2022.  Healthcare professionals and researchers working in a low or middle-income country can apply to come to…

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EVENTS

OIFE 2022 Wishbone Day campaign: #1voice4OI

Every year the OI community looks forward to the 6th of May to celebrate Wishbone Day. You can wear something yellow and help raise awareness of OI. The aim of this day is to create awareness about the varied lives of people with OI and the challenges and solutions to living full and happy lives.…

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STORIES

Activist with OI: Giorgia Meneghesso

Who are you and what is your relationship to OI? My name is Giorgia Meneghesso, I have type IV OI, with a little bit of overlapping genes with Ehlers Danlos. I am the regional representative of the Italian OI-association (As.it.OI) in Lombardia, and the third OIFE delegate for the Italian OI-organization As.it.OI. What do you…

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EDITORIALS

Patients, people or partners?

OIFE believes that all clinical trials and research projects affecting OI directly, should have some kind of patient involvement. Patient involvement can happen in different ways and in different phases of a project. Sometimes advice from a new and unexperienced parent or a child is needed. Other times a person with OI, who can represent…

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Woman practising yoga on a beachMEMBERS

Yoga & OI

“Yoga is a light, which once lit will never dim. The better your practice, the brighter the flame.” B.K.S. Iyengar (Yoga Guru)   What exactly does yoga mean? Can anyone with OI practice yoga, no matter how limited their movement is? And how can yoga help in everyday life? Archana, the President of OIFE’s member…

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People demonstrating

What is ableism and why does it matter to you?

Ableism turns disabled people into “others” – and helps non-disabled people stay “normal”. Through the hashtag #AbleismTellsMe different disabled people told their stories about discrimination. What exactly is Ableism? And what is the difference between that and hostility to disabled people? This is what Rebecca Maskos, from Germany, tries to explain in this article. It…

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Survey on pregnancy & family planning

Do you think there should be more information or education on contraception & OI, on pregnancy & OI, on preimplanation genetic diagnosis (PGD), on breastfeeding or other issues related to pregnancy or family planning? Then now is your chance to tell the decision makers! The European Reference Networks including ERN BOND – European Reference Network…

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