MEMBERS

Welcome Kazakhstan!

On October 19th the Interim Board of OIFE made the decision to include the Kazakhstan group “Patients with rare bone diseases” as an associate member organization. We wish our friends from Kazakhstan (Central Asia) a warm welcome to our international network. OIFE now include 39 member organizations around the world. 20 in Europe, 15 outside…

READ MORE
MEMBERS

Welcome Canada!

On October 18th the Interim Board of OIFE made the decision to include the Canadian Osteogenesis Imperfecta Society (COIS) as an associate member organization. We wish our Canadian friends a warm welcome to our international network.  

READ MORE
MEDICAL

OI & child abuse – pediatric radiologist perspective

Interview with Professor Amaka Offiah, University of Sheffield and honorary consultant pediatric radiologist at Sheffield Children’s Hospital Who are you and what is your relationship to OI? I work as a professor at the University of Sheffield, employed by the University of Sheffield but I am also an honorary consultant pediatric radiologist at Sheffield Children’s…

READ MORE
Child hand in adults handMEDICAL

Child abuse & OI – from geneticist perspective

Interview with Professor Gerard Pals, biochemist (MSc) and geneticist (PhD) at the VU university hospital in Amsterdam, The Netherlands Who are you and what is your relationship to OI? I am a biochemist (MSc) and geneticist (PhD). In 1989 I started a diagnostic laboratory for DNA and protein testing of inherited diseases, including OI, at…

READ MORE
Sofie and familyMEDICAL

Wrongly accused of child abuse

Interview with Sofie Hellström, mother of Gabriel, affected by a milder form of OI type 4 Who are you and what is your relationship to OI? My name is Sofie Hellström, I am 31 years old and I was introduced to OI in the summer 2020 when my son was diagnosed with a milder form…

READ MORE
Two children sitting on the groundEDITORIALS

OI & Child Abuse

In Norway, one of the most famous court cases is called the Rødseth-case. In 1981 a 19-year-old father was accused of child abuse and causing his baby girl’s death. He was sentenced to 2,5 years in prison because his five months old daughter had bruises and a fractured leg. The Supreme Court reduced the sentence…

READ MORE

OIFE now in Belgium

We are very happy to announce that the lengthy process of reestablishing Osteogenesis Imperfecta Federation Europe (OIFE) in Belgium has now come to an end. OIFE is reestablished as a new legal entity in Belgium and dissolved as a legal entity in the Netherlands.  Why did we do this? The process started because we had…

READ MORE
MEMBERS

Ukraine – Before and After

Three times our life was divided into “Before” and “After”… Written by Lyubov Petrova, mother of a daughter with OI & chair of the Ukranian OI-organization.  The Diagnosis First it was my daughter’s diagnosis with Osteogenesis Imperfecta (OI)… “Before” was joy of the birth of a long-awaited beautiful baby-daughter, registration to the best kindergarden in…

READ MORE
CONFERENCES

Registration is open – OIFE Investigator Meeting

The umbrella association Osteogenesis Imperfecta Federation Europe (OIFE) is together with members from our Medical Advisory Board invite you to register for the very first virtual European Investigator Meeting for osteogenesis imperfecta (OI), which we hope will become an annual tradition. The event will take place on Zoom November 18th 2022, 2 PM – 7…

READ MORE
Translate »