The OIFE is in touch with a lot of established organizations, who are not members of the OIFE, as well as more informal group under development. We have gathered links & contact information for those we are in touch with here.

Argentina

Webpage: http://oiargentinaepof201.wix.com/osteogenesis
Facebook Group (closed): https://www.facebook.com/groups/797764086905307

Belarus

Facebook Group (closed): https://www.facebook.com/groups/892778114138857
Organization: MPS Society

Brazil

Webpage: http://www.anoi.com.br

Bulgaria

Facebook Group (public): https://www.facebook.com/groups/225308254165040

Canada

Facebook Group (closed): https://www.facebook.com/groups/230739207243

China

Webpage: http://www.hanjianbing.org
Other: http://www.agapeflh.org (orphanage)

Chile

Website: http://www.integradoschile.cl
Organization: Integrados Chile (Facebook Group)
Facebook Group (closed): https://www.facebook.com/groups/309516192548871

Colombia

Organization: Suenos de Cristal Colombia
Organization: Fundaction Sueños de Cristal
Organization: Fundacion Acisoi

Costa Rica

Organization: Fundación Cristal Costa Rica

Croatia

Facebook Group (closed): https://www.facebook.com/groups/146473458848747

Czech Republic

Organization: Lovinsky
Facebook-group: https://www.facebook.com/groups/125408152941/

El Salvador

Facebook Group (closed): https://www.facebook.com/groups/1552460075040025

Ecuador

Facebook-page: https://www.facebook.com/fundacionfeoi

Dominican Republic

Organization: Fundación Angeles de Cristal

Ghana

Website: www.oifghana.org
Facebook-group: https://www.facebook.com/oifghana/

Greece

Facebook-group: https://www.facebook.com/groups/1634899413207713/

India

Organization: Amrithavarshini
Facebook-page: https://www.facebook.com/amrithavarshini.oi
Organization: iBones Foundation

Israel

Webpage: http://www.oi-il.org

Hong Kong

Organization: Little People of Hong Kong
Facebook Page: https://www.facebook.com/littlepeoplehk

Hungary

Website: http://www.uvegcsont.hu/
Facebook-group: https://www.facebook.com/groups/384430198282050/

Japan

Organization: Network OI
Organization: OI-Tomonokai
Facebook-page: https://www.facebook.com/oi.tomonokai

Malaysia

Organization: Malaysian Rare Disorders Society
Facebook Group (closed): https://www.facebook.com/groups/106913309654411

New Zealand

Facebook Group (closed): https://www.facebook.com/groups/OIinNZ

Nicaragua

Facebook Group (closed): https://www.facebook.com/groups/1426873687626266/

Nigeria

Facebook Page: https://www.facebook.com/oifnigeria.org

Philippines

Webpage: https://oisupportphilippines.wordpress.com
Facebook Page: https://www.facebook.com/OI-Osteogenesis-Imperfecta-Philippines-116497575888

Serbia (and former Yugoslavia)

Facebook Group (closed): https://www.facebook.com/groups/373962899457054

Slovenia

OI Group: Drustvo bolnikov s krhkimi kostmi – Osteogenesis Imperfecta Slovenja!
– Postal adress: Drustvo bolnikov s krhkimi kostmi – OI, Limbuska c. 33, 2341 Limbus, Slovenija
– Contact person: Tatjana Osovnikar

South Korea

Webpage: http://www.koia.co.kr

Sweden

Facebook-page: https://www.facebook.com/SFOI-1973346332695313/
Facebook-group (closed): https://www.facebook.com/groups/1432194603747700
Facebook-group (closed): https://www.facebook.com/groups/142209052508438

Taiwan

Webpage: http://www.oif.org.tw

Turkey

Facebook-page: https://www.facebook.com/pages/Osteogenesis-Imperfecta-Platform-Turkey-OI/550761835019691

Uruguay

Facebook Page: https://www.facebook.com/pages/OSTEOGENESIS-IMPERFECTA-URUGUAY/183111538419362

USA

Organization: The Children’s Brittle Bone Foundation

Venezuela

Facebook Page: https://www.facebook.com/FudoiZuliaVenezuela

Other

CLAN (Vietnam & Pakistan) – http://www.clanchildhealth.org
Facebook Group ”OI Support Africa” (closed): https://www.facebook.com/groups/274509552686127
Arabic Group for Adults and Parents: https://www.facebook.com/groups/873671669409148/
Heart to Heart OI Parents: https://www.facebook.com/OIPheart2heart/