The OIFE is in touch with a lot of established organizations, who are not members of the OIFE, as well as more informal group under development. We have gathered links & contact information for those we are in touch with here.
Argentina
Webpage: http://oiargentinaepof201.wix.com/osteogenesis
Facebook Group (closed): https://www.facebook.com/groups/797764086905307
https://www.facebook.com/groups/784135751741625
Belarus
Facebook Group (closed): https://www.facebook.com/groups/892778114138857
Organization: MPS Society (not OI-specific)
Brazil
Webpage: http://www.anoi.com.br
Bulgaria
Facebook Group (public): https://www.facebook.com/groups/225308254165040
Colombia
Organization: Suenos de Cristal Colombia
Costa Rica
Organization: Fundación Cristal Costa Rica
Croatia
Facebook Group (closed): https://www.facebook.com/groups/146473458848747
Czech Republic
Organization: Lomivky
Facebook Group: https://www.facebook.com/groups/125408152941/
El Salvador
Facebook Group (closed): https://www.facebook.com/groups/1552460075040025
Dominican Republic
Organization: Fundación Angeles de Cristal
Greece
Organization: Osteogenesis Imperfecta Greece
Facebook Group: https://www.facebook.com/groups/1634899413207713/
India
Charity: Amrithavarshini
Facebook Page: https://www.facebook.com/amrithavarshini.oi
Indonesia
Facebook Page: Yayasan Cahaya Mutiara Ubud – YCMU (local group in Bali)
Iraq
Facebook Page: OI Iraq
Honduras
Facebook Page: https://www.facebook.com/fundacionsoldevidahn/
Hong Kong
Organization: Little People of Hong Kong
Facebook Page: https://www.facebook.com/littlepeoplehk
Hungary
Website: http://www.uvegcsont.hu/
Facebook Group: https://www.facebook.com/groups/384430198282050/
Japan
Organization: Network OI
Organization: OI-Tomonokai
Facebook Page: https://www.facebook.com/oi.tomonokai
Malaysia
Organization: Malaysian Rare Disorders Society
Facebook Group (closed): https://www.facebook.com/groups/106913309654411
New Zealand
Facebook Group (closed): https://www.facebook.com/groups/OIinNZ
Nicaragua
Facebook Page: https://www.facebook.com/OsteogenesisNicaragua/
Facebook Group (closed): https://www.facebook.com/groups/1426873687626266/
Philippines
Webpage: https://oisupportphilippines.wordpress.com
Facebook Page: https://www.facebook.com/OI-Osteogenesis-Imperfecta-Philippines-116497575888
Serbia (and former Yugoslavia)
Facebook Group (closed): https://www.facebook.com/groups/373962899457054
Slovakia
In Slovakia some people with OI are members of the organization for neuromuscular disorders: http://www.omdvsr.sk/
South Korea
Webpage: http://www.koia.co.kr
Taiwan
Webpage: http://www.oif.org.tw
Turkey
Facebook Page: https://www.facebook.com/pages/Osteogenesis-Imperfecta-Platform-Turkey-OI/550761835019691
USA
Charity: The Children’s Brittle Bone Foundation
Venezuela
Facebook Page: https://www.facebook.com/FudoiZuliaVenezuela
Vietnam
Webpage: Rare Diseases Vietnam – covering OI
Zambia
Other
Facebook Group ”OI Support Africa” (closed): https://www.facebook.com/groups/274509552686127
Arabic Group for Adults and Parents: https://www.facebook.com/groups/873671669409148/
Heart to Heart OI Parents: https://www.facebook.com/OIKheart2heart