The OIFE is in touch with a lot of established organizations, who are not members of the OIFE, as well as more informal group under development. We have gathered links & contact information for those we are in touch with here.

Argentina

Webpage: http://oiargentinaepof201.wix.com/osteogenesis
Facebook Group (closed): https://www.facebook.com/groups/797764086905307

https://www.facebook.com/groups/784135751741625

Belarus

Facebook Group (closed): https://www.facebook.com/groups/892778114138857
Organization: MPS Society (not OI-specific)

Brazil

Webpage: http://www.anoi.com.br

Bulgaria

Facebook Group (public): https://www.facebook.com/groups/225308254165040

Colombia

Organization: Suenos de Cristal Colombia

Costa Rica

Organization: Fundación Cristal Costa Rica

Croatia

Facebook Group (closed): https://www.facebook.com/groups/146473458848747

Czech Republic

Organization: Lomivky
Facebook Group: https://www.facebook.com/groups/125408152941/

El Salvador

Facebook Group (closed): https://www.facebook.com/groups/1552460075040025

Dominican Republic

Organization: Fundación Angeles de Cristal

Greece

Organization: Osteogenesis Imperfecta Greece
Facebook Group: https://www.facebook.com/groups/1634899413207713/

India

Charity: Amrithavarshini
Facebook Page: https://www.facebook.com/amrithavarshini.oi

Indonesia

Facebook Page: Yayasan Cahaya Mutiara Ubud – YCMU (local group in Bali)

Iraq

Facebook Page: OI Iraq

Honduras

Facebook Page: https://www.facebook.com/fundacionsoldevidahn/

Hong Kong

Organization: Little People of Hong Kong
Facebook Page: https://www.facebook.com/littlepeoplehk

Hungary

Website: http://www.uvegcsont.hu/
Facebook Group: https://www.facebook.com/groups/384430198282050/

Japan

Organization: Network OI
Organization: OI-Tomonokai
Facebook Page: https://www.facebook.com/oi.tomonokai

Malaysia

Organization: Malaysian Rare Disorders Society
Facebook Group (closed): https://www.facebook.com/groups/106913309654411

New Zealand

Facebook Group (closed): https://www.facebook.com/groups/OIinNZ

Nicaragua

Facebook Page: https://www.facebook.com/OsteogenesisNicaragua/
Facebook Group (closed): https://www.facebook.com/groups/1426873687626266/

Philippines

Webpage: https://oisupportphilippines.wordpress.com
Facebook Page: https://www.facebook.com/OI-Osteogenesis-Imperfecta-Philippines-116497575888

Serbia (and former Yugoslavia)

Facebook Group (closed): https://www.facebook.com/groups/373962899457054

Slovakia

In Slovakia some people with OI are members of the organization for neuromuscular disorders: http://www.omdvsr.sk/

South Korea

Webpage: http://www.koia.co.kr

Taiwan

Webpage: http://www.oif.org.tw

Turkey

Facebook Page: https://www.facebook.com/pages/Osteogenesis-Imperfecta-Platform-Turkey-OI/550761835019691

USA

Charity: The Children’s Brittle Bone Foundation

Venezuela

Facebook Page: https://www.facebook.com/FudoiZuliaVenezuela

Vietnam

Webpage: Rare Diseases Vietnam – covering OI

Zambia

Other

Facebook Group ”OI Support Africa” (closed): https://www.facebook.com/groups/274509552686127
Arabic Group for Adults and Parents: https://www.facebook.com/groups/873671669409148/
Heart to Heart OI Parents: https://www.facebook.com/OIKheart2heart

Translate »