Join OIFE’s Educational Webinar June 4

We invite you to attend the annual OIFE Educational Webinar on June 4th from 13.30 – 17.00 CET (11.30 – 15.00 Universal Standard Time), which will take place online on Zoom. The webinar includes news about projects and activities from OIFE, patient advocacy education, news from OI-research & development and exchange and updates between OIFE’s…

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Join OIFE’s AGM 2022

Are you a member of one of OIFE’s member organizations? Then you can join our Annual General Meeting (AGM) on Zoom.  OIFE’s Annual General Meeting 2022 part 1 (the formal business part) will take place via Zoom on June 4th from 11-13PM Central European Time. The AGM provides an opportunity for the Executive Committee (EC)…

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MEDICAL

Heart & lung risks in adults with OI

Interview with Robert A. Sandhaus, MD, PhD, FCCP, respirologist at National Jewish Health in Denver, Colorado Who are you & what is your relationship to OI? I’m Robert A. Sandhaus, MD, PhD, FCCP, although my patients call me Dr. Sandy. I’m a respirologist at National Jewish Health in Denver, Colorado where I lead a team…

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Inclusion Project for Students with OI

Interview with Jessica Chemtov, Kinesiology student and Galil Osman, Occupational Therapy student; both at McGill University in Montreal, Canada   We both came to learn about OI through our respective disciplines. We are research trainees of Dr. Argerie Tsimicalis who is an Associate Professor at McGill University and a Nurse Scientist at the Shriners Hospitals…

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MEMBERS

Get to know Padrinos-OI !

Interview with María Barbero, Founder and President of Padrinos-OI Padrinos-OI is a non-profit organization (and supporting member of the OIFE) that originally provided sponsorships with the aim of helping individual patients with OI where medical care would otherwise be impossible. Now Padrinos-OI only works with national organizations that ensure the framework conditions for professional medical…

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MEMBERS

New MDT OI-Clinic in Ghana

In January 2022 a new multidisciplinary (MDT) clinic for osteogenesis imperfecta was established in Ghana. We did an interview with the initiator and woman behind it – Mrs. Justina Yiadom-Boakye, the president and Founder of OIFE’s associate Member Ghana (OIF Ghana). Who are you and what is your relationship with OI? I am Mrs Justina…

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Illustration of dental implantsRESEARCH

Dental implants in OI

Interview with Dr. Ole Oelerich, Dentist at the Department for Prosthodontics and Biomaterials, University Hospital in Münster, Germany Who are you & what is your relationship to OI? My name is Dr. Ole Oelerich, I am a Dentist at the Department for Prosthodontics and Biomaterials at the University Hospital in Münster, Germany. After completing my…

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Sammi hold a ribbon saying Esperanza"STORIES

Artists with OI: Sammi Haney

Interview with Sammi’s Father Matt Haney Sammi loves weird silly toys and takes whatever her current favorite is with her everywhere. She has OI Type III and uses a wheelchair. She has broken hundreds of bones from simple things like turning too much when asleep or sneezing too hard. At the age of 11 she…

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Flyer announcing the OI2022 conference in Sheffield, UK

Travel Grant for OI2022

Osteogenesis Imperfecta Federation Europe (OIFE), The Osteogenesis Imperfecta Foundation and The Brittle Bone Society (UK & Ireland) are offering a travel grant for the OI2022 conference in Sheffield, UK which takes place from Aug 30th – Sep 2nd 2022.  Healthcare professionals and researchers working in a low or middle-income country can apply to come to…

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