Are you interested in helping us?

We are always looking for people who are willing to do a job whether it’s fundraising, peer work, secretarial tasks, hosting events etc.

At the moment we are in need of more people who can help with:

  • Communication in social media
  • Translations to Spanish
  • Writing articles for the OIFE Magazine
  • Further developing our webpages
  • Helping our Social Network Coordinator with advice to individuals
  • Becoming a moderator in our Adult Health Facebook-group
  • Taking photos at events
  • Taking photos we can use in our website & publications
  • Taking part in focus groups
  • Acting as a patient representative in research
  • Attending meetings related to research & development as a patient expert

At the moment the OIFE is run completely by volunteers and we are continuously in need of more people who want to help. Please contact us on if you are interested in helping OIFE in reaching our goals – whether you are a person with OI, a family member, a professional, a company or just somebody who wants to support the cause.

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