Demystifying Clinical Trials: how they work and why they matter/ Patient Empowerment through education

Are you a patient or a caregiver? Ever wonder how new medical treatments reach patients? This webinar is designed specifically for patients and caregivers who want to understand the science and decisions behind their care and become an active part in it. Register and join us in this journey of learning, because knowledge is power when it comes to your health.

What will you learn:
• The phases of Clinical Trials and patient safety.
• What HTA (Health Technology Assessment) means and how it impacts drug availability.
• What is ERN BOND – European Reference Network on Rare Bone Diseases and how you can get involved and make your voice heard.

Confirmed Speakers:
• Claudia Fuchs – Senior Project Manager Therapeutic Development at EURORDIS-Rare Diseases Europe
• Dalma Hosszú – Head of Patient centricity and engagement at Syreon Research Institute
• Luca Sangiorgi – ERN BOND Coordinator