The IMPACT Survey is a successful collaboration between OIFE, Osteogenesis Imperfecta Foundation and Mereo. It investigated the economic, clinical, and humanistic challenges of OI on affected individuals, caregivers, and the broader community. Now the first article on OI caregivers has been published.

As described on the latest paper from IMPACT: Improved support is needed for caregivers of people living with OI to enable employment.

528 caregivers in the survey spend an average of 209 € on healthcare and support. 64% of the caregivers were employed and half of them missed work in the previous 4 weeks. Read all about it here.

And if you want to know more about IMPACT, you can find it on the website.