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OI diagnosis in late life

As a child, Bruno (56) often suffered fractures without any clear cause. It wasn’t until after his thirties that the diagnosis came, shortly after his daughter was born.

OI is an invisible condition with a major impact, Bruno explains. “It was especially tough as a child and teenager. Kids can be really harsh. You constantly have to explain why you can’t do certain things because the risk of breaking something is always there. Your invisible and unfamiliar condition doesn’t exist in their eyes — they don’t believe you. Yet simply slipping or tripping can be disastrous for someone with OI. I still carry the weight of many hurtful comments I heard back then.”
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