From March 5-7, OIFE board member Alessandra Tolaccia was representing OIFE at the Re(Act) Congress in Brussels, Belgium.

The congress covers different topics related to rare conditions including newborn screening, data sharing, advanced therapies and impacts of rare conditions on patients, families, and society. You can see the full program here.

Organisers stressed that strong partnerships among government bodies, research institutions, patient advocacy groups, and private actors can greatly accelerate progress in diagnostics and therapies.

“Our strength lies in collaboration,” said Daria Julkowska, ERDERA’s Coordinator. “By uniting all stakeholders, ERDERA addresses the complex challenges of rare diseases on multiple fronts – from research and funding to practical patient support. Our goal is to turn promising advancements into real, meaningful benefits for those living with these conditions worldwide.”

Read a report from the event here.