The European Reference Network on Rare Bone Diseases (ERN BOND) is one of the 24 existing European Reference Networks. In particular, ERN BOND aims to improve access to high-quality healthcare for people who have rare bone diseases.

Several patient representatives attended the annual hybrid meeting of ERN BOND which took place in Milano this week. Claudia Finis attended on site and Rebecca Skarberg attended online.

Topics covered were registries, development of guidelines, a survey on pregnancy and OI and more. See the whole programme here.