The Council of European Rare Disease Federations (CEF) of the European rare disease umbrella EURORDIS provides a platform for the exchange of experiences and information across federations working for different diseases or group of diseases.

We were three people who represented OIFE at the CEF-meeting in Paris this week.

Among the topics were mental health & unmet needs in rare conditions, newborn screening, EU politics, reimbursement of new medicines and communication.