OIFE is lucky to have two patient representatives (ePags) in ERN BOND – European Reference Network on Rare Bone Diseases. This week they have had an important meeting in Norway, to talk about how to improve care and services for people with rare bone conditions in Europe.

Not sure what ERN is and does? We recommend you to read this article: “ERN BOND: The key European network leveraging diagnosis, research, and treatment for rare bone conditions.”