The IMPACT Survey has a new home!

Launched in time for Wishbone Day 2024, the new IMPACT Survey website helps to raise awareness of osteogenesis imperfecta by capturing the lived experience of the condition, as told by people with OI, their caregivers and close relatives.

On the IMPACT Survey website, you will be able to find out more about this landmark survey and its importance to the OI community and the future of care, as well as social media resources to support your efforts in raising awareness of OI. You will also be able to dive deeper into the latest publications and presentations from the IMPACT Survey and what other data is available. Researchers and patient advocacy organisations can submit a request form to access IMPACT Survey data to support their efforts to improve life for those with OI.

Discover the new IMPACT Survey site here:

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