Check out the new resource from our friends in the USA, which in our opinion must be the best thing since sliced bread:

“The Adult Health Toolkit” made by the Osteogenesis Imperfecta Foundation is: “Information for Adults Living with OI, Their Families, and Medical Professionals” to help you navigate the many aspects of managing your health as an adult living with OI. Learn more and check out this resource at www.oif.org/adulthealth.

This resource provides you and your caregivers the knowledge to help educate your healthcare providers and to effectively advocate for your health care needs. The Toolkit contains medically verified information in one place with helpful worksheets that adults can use to keep track of their medical information and their healthcare team. 

Tracy Mulroy